Life-Course Impact of Chronic Health Conditions: A Family & Whānau Perspective

Timeframe

2020–2023

Funding

Ministry of Business, Innovation, and Employment

COMPASS staff

Barry Milne
Lisa Underwood
Ofa Dewes

Collaborators

University of Auckland
Andrew Sporle
 
University of Waikato
Tahu Kukutai
Ella Newbold
 
University of Canterbury
Lukas Marek
 
University of Otago
Gareth Treharne
Hamish Jamieson
Jesse Kokaua
Nick Bowden
Andrea Teng
 
University of Queensland
Janeen Baxter
Yanshu Huang
Martin O’Flaherty
 
Te Pou Tiringa
Will Edwards
Mihi Ratima
 
Tongan Health Society
Glenn Doherty
 
Pacific Health Plus
John Fiso

Description

This research stream comprised four projects that were partly funded by three of the National Science Challenges: A Better Start, Healthier Lives, and Ageing Well. The first project looked at the bigger picture of the experiences of families living with chronic health conditions; the second focused right down in a qualitative study of Tokelauan families; and the last two supported the development of novel Kaupapa Māori research methods to enable investigations of both life-course and inter-generational impacts of interventions on hauora Māori.
 

  1. Barry Milne led a team investigating the influence of chronic disease on the wider family and whānau at different life stages, focusing on children, households, partners and carers, and elders.
     
  2. Ofa Dewes led a team undertaking an in-depth qualitative study of Tokelauan families living with chronic disease, to assess family, household, and community strengths that enabled them to thrive despite the challenges they faced.
     
  3. Mihi Ratima led a team at Te Pou Tiringa in Taranaki to develop a framework for assessing the power of Kaupapa Māori early-life and whānau programmes looking to transform outcomes for whānau Māori throughout the life-course and across generations.
     
  4. Tahu Kukutai led a team at the University of Waikato to develop a novel whakapapa-centred methodology, and a framework for conceptualising and doing inter-generational research.